Monday, August 27, 2012

Be Prepared

I know a lot of you have sent your kids off to school already for the year, as evidenced by the ubiquitous first-day-of-school photos on Facebook, the wane of school readiness pins on Pinterest, and the way that the end of summer is hanging in the air.

We're getting there, but the boys don't start until next Tuesday. Eight more days. :) To buffer the alternating waves of sadness and excitement for this new chapter, I have been preparing all the forms and supplies that are needed for the school year. First item of business was getting Cole's looooooong list of Kindergarten supplies lined up:



That there is everything save for his backpack (which, if you must know, is Transformers) and a box of Ziploc bags for the classroom that I conveniently opened and used thinking it was for the house. Thatclose!

I also have filled out probably about six forms relating to Cole's peanut/tree nut allergy. The forms are annoying and the information overlaps significantly, but after the death of a girl in our county from an anaphylactic reaction to peanuts, I'm happy to lean in the direction of over-documentation. Virginia has also passed legislation recently that mandates schools to carry non-student-specific Epi-Pens in case anyone (diagnosed or not) has a severe allergic reaction.

Speaking of extra documentation, I've also been carefully filling out Dean's health services plan for school (center-based). His teacher recommended we do this and I wanted to kiss her for it. It's a document that describes salient aspects of Dean's PWS diagnosis that will affect him in school and how those concerns are to be addressed. Knowing that no one will likely be scouring this with a fine-toothed comb, Bob and I tried to keep to the most important factors: anxiety around and access to food, adherence to Dean's particular diet, the influences of temperature extremes and sleep apnea, extra points for observation if suspected to be sick, expressive speech delay, and difficulty with transitions (although I haven't written too too much about it, Dean has been exhibiting difficulties with transitions characteristic of many people with PWS).


With the health services plan, every person who comes into contact with Dean at school will have this information. Now we pray that they read it. :)

Forms, check! Onto the orientations in a few days.... would love to hear how the school year is going for others out there so far!

2 comments:

Esther Scott said...

So, when did I miss the post that you are NOT going to homeschool? Sounds like you've been working on a ton of work. Hope the year starts off well.

Ali Foley Shenk said...

Hey Esther,
Here's the post. I wish I could say it was entirely my decision, but it wasn't. Are you going to homeschool?
http://divingintothewaves.blogspot.com/2012/05/or-maybe-not.html
Ali